My dad was convinced he was not long for the world when Ryan met my dad back in 2001. Life was not easy for him and he struggled with it. From snippets dropped here and there, he and his older brother were the result of an affair. His parents did eventually marry, and then divorced. His mom remarried a couple times after that. His father was an alcoholic. They were poor and lived in some very rough conditions. My dad grew up using his step-dad's last name and eventually went back to his biological father's name, while his brother kept the step-dad's last name. And thus is the beginning and ending of my knowledge of his family life.
During the last 10 years or so, my dad had 3 or 4 heart attacks. He didn't say anything about them at the time they happened, and when he did decide to share- it was to Ryan with the directive to not tell me. He had COVID pretty bad at one point, to the point where he was struggling to breathe. He kept saying by this point that he didn't want to live and didn't want any life-saving measures taken to preserve his life. But I think when faced with his mortality he would always make the choice to have medical interventions. I would too, but it was just another one of those odd quirks of his to say one thing and do another. In early 2023 he had something growing on his bladder, making him unable to relieve himself. He would never definitively say if it was cancerous or not. Sometimes yes and sometimes it was something else. He had to have a catheter put in, and he had to wear it all the time. It was both comical and disgusting to see his pee bag hanging from his belt. Then he said he was going to need it for the rest of his life, and then he no longer needed it.
As his financial life imploded in November 2023, his health took the brunt of his stress. He realized he was losing his sight and so drove himself to an urgent care center (where his car stayed for weeks). They weren't sure what was causing it. He lost all vision in one eye, and his hearing was going. He was transferred to Deaconess Hospital in Spokane, and then later to a rehabilitation center. I, of course, knew nothing about any of it until late November when he was in the St. Luke's rehab. The medical staff ruled out a stroke, but a diagnosis was not found yet. When Ryan and I went to visit him, my dad confessed to "seeing dead people." I laughed it off at first because I couldn't always tell when he was trying to be funny. But no. In his blind eye, he was seeing people and objects that weren't really there. He was pretty confused about what was real and what wasn't. But kept looking at us with the "side eye" due to only using the one eye to see. He looked continually skeptical. I don't know if he really thought he was seeing dead people or not. The doctor said his brain was likely trying to make up for the sudden lack of stimulation on the one side by filling it in with... stuff. Animals. People. Who knows. My dad also was really weak, and his legs weren't working well and were painful. The rehab staff were committed to getting him back on his feet and functioning again, but my dad was resistant. He just wanted to sleep and stop with the pestering.
A week or so later St. Luke's called me with my dad's discharge plan and told me all of the help he was going to need. I panicked. My dad could not live with me. I know family is supposed to step in when older family members are going through health challenges. I know this. I didn't need the lecture. I promise I am not some selfish pig refusing a reasonable ask. How could I make them understand that I just couldn't? I prayed hard that I would not have to be subjected to living with him again. He needed help getting up and moving around. Using the bathroom. All of the basic functions.
His health worsened and he was sent back to another hospital- Sacred Heart this time. I got a call from the hospital that he had been admitted to the ER and wasn't looking good. His sight was almost all gone, his hearing worse, and his kidneys were a mess and they weren't sure what was going on. Instead of improving at rehab, he had gone steadily downhill.
He spent a day and a half in the ER. We drove up and spent time with him. He looked really frail. Dad was adamant that he only wanted comfort measures. Give him pain meds and let him die. The doctors were pretty sure he was treatable. They ran all kinds of tests on him, and finally, eventually got him a room that was not in the loud ER.
He eventually got a diagnosis. He had what was formerly known as Wegener's Disease, and now called Granulomatosis with polyangiitis. It's an autoimmune disease that attacks the blood vessels and causes inflammation. All of those delicate blood vessels that go to organs will swell and cut off blood flow and can cause organ failure if not treated quickly. It checked off most of his list of symptoms. Hearing and sight loss, fever, fatigue, kidney problems, bloody nose, chest pain and shortness of breath. It didn't necessarily explain the pain in his lower legs and feet.
This was treatable. Some of the hearing and sight loss could be reversible. He could go on to live a decent life with some accommodations. Between the doctors, Ryan and I, we thought treatment was worth pursing. The doctors said my dad could hang on for a couple of years with no intervention and just be miserable. Or they could treat him. My dad gave his permission for treatment.
We visited my dad a couple more times in December. I got updates from his doctor of the week fairly often. I was on the phone quite a bit handling his other affairs. We had some interesting visits. I don't know if it was the disease or just my dad's paranoia coming out, but my dad was pretty sure there were Chinese people coming in and watching him at night. And the Russians. He said he could hear them talking in his room. He also saw cats wandering in the hospital. Since his vision only allowed him to see lights and shadows at that point... well, who knows what was going on. We made sure we told his doctor since he wasn't likely to volunteer that information. My favorite was the time he had a nose bleed that wouldn't stop so he had a tampon hanging out of his nose. They wouldn't remove it until it had been 24 hours.
The hospital released my dad around December 30th. My dad had an iPhone by then and was learning how to get Siri to read and send text messages and make calls using his voice. My dad got a friend to take him back to his basement apartment. The hospital released him without telling me. Since I'd had a conversation with him just a couple days prior about how he kept thinking about going up to the top of the hospital and throwing himself off, I got a little upset and told them they were pretty irresponsible. They countered with they had set him up with a whole lot of medications, info for meals on wheels, his instructions printed on paper, and a follow up doctor's appointment. Having talked with my dad's friend who said he had to pretty much drag my dad up the steps up from the garage and then down to the basement, I wasn't sure this was going to work out. As he also couldn't read anymore... Those discharge papers were just not helpful.
I started getting texts from the owners of the house where my dad lived. The owners traveled a lot, so the set up where my dad fed their dog and lived in their basement worked just fine for the first couple of months. My dad didn't leave the house. He didn't take the right medication (because he couldn't read the labels....). Ryan drove up to Spokane to check on him and get his various bottles of medicine (much of it pain meds) set up in order and try to get him to remember how much and when. We didn't want my dad to stay with us and he said he was fine, so... it was going to be what it would be I guess. Eventually his mind wandered enough that it was bothering his housemates. He kept waking them up saying some mother had a left a baby in his bed and he was looking for the mom. He would fall down the stairs. He thought he could drive himself as long as he drove during the daylight hours (that would have been so bad). He wasn't really eating. He said he was seeing rats in his room. The homeowners were ADAMANT that my dad needed to get out of their house. When we resisted and said he had rights and couldn't be thrown out because they didn't like him anymore because he was still paying rent, they had their bishop call us and say that we were his family and we needed to step up and do the right thing. No one would be bothered to take him to the hospital even though he very clearly needed medical help. Well you are just going to have to wait for the weekend.
Ryan took one for the team again, drove up to Spokane again, and took my dad to the ER to be admitted. We prayed they would admit him. When Ryan arrived, my dad fully thought Ryan and I had been there for a couple of days helping him get ready to move. My dad thought there were rats, nasty insects, and drug paraphernalia all over the basement. There were not. My dad had packed some of his belongings into boxes very clearly around the rats that he saw. There were empty spaces in the boxes. Ryan waited in the ER waiting room with my dad for 6 hours. My dad told off a lady there also waiting. He said her daughter kept taking his cane. She didn't have a daughter and dad had put his own cane on the floor. My dad held whole conversations with people who were not there. Ryan would just explain to the people around them in a normal voice that this was why they were there, and he was sorry. Then in a louder voice to my dad that there was no girl hiding under the table. My dad had resisted believing Ryan, and it was tricky getting him to the hospital and to stay there waiting. My dad had a little vision and enough imagination to keep things lively. He had shouted "watch out!" while Ryan was driving on the freeway over nothing that was visible to Ryan. But still Ryan slammed on his brakes before realizing what was going on. Finally my dad was admitted and Ryan could drive the 3 hours home again.
The following weekend, Ryan and I were back in Spokane and packed up all of my dad's stuff from the basement apartment and put it in his storage unit. It's tricky to go through a fully furnished bedroom, bathroom, and a closet half filled with the owners' belongings and try to pick out the ones that belong to a person. Some things were obvious, and others less so. It was a pain. But we got him out, and that's when we brought his car to our house. We had previously -ahem- borrowed his keys and kept beeping his key fob at the urgent care center where we thought he had left the car, until we finally found it and drove it to the house he'd been living at. If it had been a smaller urgent care center and not snowy, it would have been easy enough to pick out the compact grey Toyota Yaris with the blankets covering the seats. But it wasn't, and we were tired.
So my dad was homeless and his only residence was Sacred Heart Hospital. I worked with his case worker to find a place for him to go and that would be able to take care of his many needs. Living alone hadn't worked well. I wouldn't take him, and my sister wouldn't either. He did ask many times. But places like that are expensive and he didn't have any money. The ironic bit of this whole thing was my dad never, ever, ever wanted to use government assistance for anything. Those were socialist programs and he would not use them. But that looked to be his best option. Getting him on Medicaid/Medicare meant declaring him poor, those hospital bills kept stacking up, and those crypto-currency investments weren't becoming any more real.
But the shaky tethers keeping our relationship functioning came apart spectacularly (see a previous post). Dad was not willing to admit to any wrong doing ever, and I washed my hands of the whole thing. Dad dug himself into this pit and he could deal with the fallout.
To convince his sister to let him live with them, he told them he needed a warmer climate to help him deal with his pain. I don't know if that was true or not. I heard through the grape vine that he had been in the hospital again after his discharge from Spokane sometime in March. He had been on a lot of pain medication. We had seen his list of medications. He had been in rehab once a few years ago for being addicted to pain medication. I think this was his coping strategy, where his dad had used alcohol. Maybe the disease had flared up again. Maybe his body had just had enough. Maybe the comfort measures in Texas had been morphine. It seems as though sometimes morphine can take a very sick and tired body and help the soul into the next world. I don't know. It was a sad end for a tough life.
In putting all of these experiences into words, I feel like I failed somehow. I don't know what I could or should have done differently. I did try to help him. But when my help did not align with his wishes, I was of no further use to him. He had some dumb, enabling friends. His naturopathic friend who he was living with said he could fix him up better than the specialists could. Ha!
I was hoping I would feel better as I type all of this out and sort through all of the experiences. I was hoping for some clarity. Mostly I just want the anguish to go away. The feeling that I was somehow not good enough.
It's a work in progress.